Empowering families facing CHD through support, advocacy, and education.
Facts about CHD
A congenital heart defect (CHD) means an abnormality of the heart that is present at birth.There is no known cause or cure for heart defects.
1 in 100
CHD is the most common birth defect, affecting nearly 1 in 100 babies born each year globally.
85%
Advances in medical care have significantly improved survival rates for children born with CHD. Today, more than 85% of children with CHD survive into adulthood.
Lifelong
CHD is a lifelong condition. Even if repaired in childhood, individuals may require ongoing medical care and monitoring into adulthood.
25%
Around 25% of children born with congenital heart defects (CHD) will require invasive surgery or other interventions to survive, particularly in the first year of life.
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Join us in supporting families impacted by CHD—together, we can create a stronger community.
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Volunteer & Fundraising
Get involved through volunteering or fundraising to make a lasting impact on families affected by CHD
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Spread Awareness
Help us spread awareness about CHD and make a difference in the lives of families affected.
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Join us at our events to support CHD families and help raise awareness together.
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Need Support?
If you or a loved one is affected by congenital heart defects (CHD), we’re here for you. Whether you need emotional support, educational resources, or connections with other families going through similar experiences, we offer a compassionate community that understands the challenges of living with CHD.
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What others are saying
The relationship a family creates with care providers as well aswith other families who are also traveling an often unfair andchallenging journey with Congenital Heart Disease isprofound. Intermountain Healing Hearts is a wonderfulorganization predicated on creating support systems for theserelationships to be created and fostered. Its role in helping afamily navigate a significant medical challenge for not onlytheir child, but their entire family, is invaluable. The HeartCenter at Primary Children’s Hospital is so thankful for theirwork and partnership.
Dr. S. Adil Husain
Chief of Pediatric Cardiothoracic Surgery and Co-Director of the Heart Center at Primary Children's Hospital
We were fortunate enough to find out about IHH very early on in our heart journey. Having a community of loving, caring individuals who knew what we were going through made all the difference for us in being able to process the news of our child’s diagnosis and move forward with hope and even joy.
Johnita Mitchell
Parent of Job Robert Mitchell, HLHS
Intermountain Healing Hearts provides friends that under-stand.
Brinley Patton
Teenager with HRHS
Families and individuals diagnosed with Congenital HeartDisease are going on a journey very few understand. The power of being connected to others on this same journey is unmeasurable. Intermountain Healing Hearts provides that connection, allowing families to support each other emotionally and logistically in ways only another heart family can.
Jaylynn Olson
Cardiology social worker, Primary Children's Hospital
Before IHH existed, our family felt alone in our heart journey. IHH has given us people who can relate to the struggles and triumphs throughout our medical journey. We have created bonds that will last a lifetime, and we can openly discuss situations only heart parents and few others understand.
Djinni Yancey
Parent of Isaac Yancey, hypoplastic right ventricle, dextrocardia, pulmonary stenosis, VSD, and leaky tricuspid valve
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