Intermountain Healing Hearts

Supporting families of children and adults with Congenital Heart Defect (or CHD) and childhood onset heart disease across Utah and the Intermountain West, providing resources and a community of care.

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Empowering families facing CHD through support, advocacy, and education.

Facts about CHD

A congenital heart defect (CHD) means an abnormality of the heart that is present at birth.There is no known cause or cure for heart defects.

1 in 100
CHD is the most common birth defect, affecting nearly 1 in 100 babies born each year globally.
85%
Advances in medical care have significantly improved survival rates for children born with CHD. Today, more than 85% of children with CHD survive into adulthood.
Lifelong
CHD is a lifelong condition. Even if repaired in childhood, individuals may require ongoing medical care and monitoring into adulthood.
25%
Around 25% of children born with congenital heart defects (CHD) will require invasive surgery or other interventions to survive, particularly in the first year of life.

Support by...

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Donate Today to support CHD

Make a difference and help us support families affected by CHD—your donation makes a difference!

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Become a member

Join us in supporting families impacted by CHD—together, we can create a stronger community.

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IHH walk

Volunteer & Fundraising

Get involved through volunteering or fundraising to make a lasting impact on families affected by CHD

Get Involved
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Need Support?

If you or a loved one is affected by congenital heart defects (CHD), we’re here for you. Whether you need emotional support, educational resources, or connections with other families going through similar experiences, we offer a compassionate community that understands the challenges of living with CHD.

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Upcoming Events

MAR
22
11:00 AM - 1:00 PM
Heart to Heart Women's Luncheon
EVENT DETAILS
JUN
14
TBD
Pickleball Instruction & Tournament
EVENT DETAILS
JUN
17
TBD
IHH Families Movie Night
EVENT DETAILS
AUG
8-9
TBD
IHH Family Heart Camp
EVENT DETAILS

What others are saying

The relationship a family creates with care providers as well aswith other families who are also traveling an often unfair andchallenging journey with Congenital Heart Disease isprofound. Intermountain Healing Hearts is a wonderfulorganization predicated on creating support systems for theserelationships to be created and fostered. Its role in helping afamily navigate a significant medical challenge for not onlytheir child, but their entire family, is invaluable. The HeartCenter at Primary Children’s Hospital is so thankful for theirwork and partnership.

Dr. S. Adil Husain

Chief of Pediatric Cardiothoracic Surgery and Co-Director of the Heart Center at Primary Children's Hospital

We were fortunate enough to find out about IHH very early on in our heart journey. Having a community of loving, caring individuals who knew what we were going through made all the difference for us in being able to process the news of our child’s diagnosis and move forward with hope and even joy.

Johnita Mitchell

Parent of Job Robert Mitchell, HLHS
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Donate today!

Become a sponsor today and support our mission by donating funds or services, helping us provide essential resources to families impacted by CHD.